World ME/CFS Awareness Day

Millions are missing. It's time to understand, support, and act.

How You Can Help

Understanding ME/CFS

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, chronic, and deeply debilitating disease that affects multiple body systems. It is characterized by profound fatigue, cognitive dysfunction, sleep abnormalities, and pain.

Post-Exertional Malaise (PEM)

The hallmark symptom. A worsening of symptoms following even minor physical or mental exertion, which can last days, weeks, or longer.

The Missing Millions

An estimated 17 to 24 million people worldwide have ME/CFS. Many are undiagnosed, housebound, or bedbound, disappearing from public life.

Lack of Funding

Historically, ME/CFS has been severely underfunded and stigmatized in the medical community, leaving patients without approved treatments.

A Personal Voyage: The Solivaga

For Dr. Mehzeb Chowdhury, living with ME/CFS is a debilitating reality that severely limits physical movement. It is a daily requirement to navigate chronic illness while striving to maintain rigorous intellectual and creative work.

From this experience emerged The Solivaga, a validated deep-space mission-control simulation. Scheduled for launch on May 12, 2026—coinciding with World ME/CFS Awareness Day—The Solivaga is more than a technical achievement; it is a digital memorial.

The simulation serves as a powerful metaphor for the solitary, decades-long voyage experienced by patients whose physical worlds have shrunk due to chronic conditions like ME/CFS and Long Covid. It is a testament to the fact that while a physical body may be confined by a disabling condition, the mind retains the boundless capacity to explore the cosmos.

"Bridging the gap between extraordinary science and the human experience of illness."

How You Can Help

Awareness must lead to action. Here are practical ways you can support the ME/CFS community today:

Resources & Links

Learn more from these trusted organizations leading the fight for recognition and research.